se-atlas

Mapping of Health Care Providers
for People with Rare Diseases

Zentrum für seltene Hormonstörungen am Universitätsklinikum Würzburg

Decription of facility

Director / Spokesperson
Prof. Dr. Stefanie Hahner
Information
Care facility for adults and children
Decription

Das Zentrum für seltene Hormonstörungen am Universitätsklinikum Würzburg betreut Patienten mit allen seltenen Störungen der hormonproduzierenden Organe. Ein besonderer Schwerpunkt liegt auf der Betreuung von Menschen mit Hypophysen-, Nebenschilddrüsen und Nebennierenerkrankungen. Das Zentrum arbeitet interdisziplinär und multiprofessionell, bietet Schulungen für Patienten mit Nebenniereninssuffizienz an und beteiligt sich an verschiedenen Forschungsprojekten.

Consultation hours

Special consultation hours:
nach Vereinbarung.

Care provisions

This facility offers the following
  • Participation in registries
    Hypoparathyreoidismus-Register, Deutsches Conn-Register, Cushing-Register
  • Social / legal advice
  • Genetic counselling
  • Clinical studies / research
  • Diagnostic
  • Therapy
  • Contact person for patients with an unclear diagnosis
    primärer Kontakt über das Zentrum für Seltene Erkrankungen - Referenzzentrum Nordbayern
  • Contact with support groups
    Netzwerk Hypophysen- und Nebennierenerkrankungen (www.glandula-online.de), Bundesverband Schilddrüsenkrebs

Contact

Prof. Dr. Stefanie Hahner
0931 20139200
hahner_s@ukw.de
Website

http://www.zese.ukw.de/fuer-patienten/schwerpunkte/zentrum-fuer-seltene-hormonstoerungen.html

Address

Josef-Schneider-Str. 2
97080 Würzburg

Medizinische Klinik I

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Languages

Germany.png Deutsch
United_Kingdom.png Englisch
Italy.png Italienisch

European Reference Network 1

Preview of the assigned diseases 15

Pituitary hormone deficiency of vascular origin Syndrome with hypoparathyroidism Pituitary apoplexy Autoimmune polyendocrinopathy type 2 Autoimmune polyendocrinopathy Pituitary hormone deficiency secondary to storage disease Acromegaly Rare hypoparathyroidism Pituitary hormone deficiency secondary to a granulomatous disease Post-traumatic pituitary deficiency Congenital hypogonadotropic hypogonadism Non-acquired pituitary hormone deficiency Acquired central diabetes insipidus Autosomal dominant hypocalcemia Disease associated with non-acquired combined pituitary hormone deficiency Familial isolated hypoparathyroidism due to impaired PTH secretion Combined pituitary hormone deficiencies, genetic forms Pituitary gigantism Normosmic congenital hypogonadotropic hypogonadism Pituitary stalk interruption syndrome Short stature due to GHSR deficiency Infundibulo-neurohypophysitis Congenital isolated ACTH deficiency Addison disease Pituitary hormone deficiency of tumoral origin Acquired pituitary hormone deficiency Primary hypophysitis Pituitary hormone deficiency of meningeal origin Late-onset isolated ACTH deficiency Pituitary tumor Adenohypophysitis Non-acquired combined pituitary hormone deficiencies without extrapituitary malformations Arachnoid cyst Optic pathway glioma Craniopharyngioma Panhypophysitis Meningioma Central diabetes insipidus Chordoma Autoimmune polyendocrinopathy type 1 Bilateral massive adrenal hemorrhage Pituitary carcinoma Familial isolated hypoparathyroidism Familial isolated hypoparathyroidism due to agenesis of parathyroid gland Non-acquired combined pituitary hormone deficiency Autoimmune polyendocrinopathy type 3 Kallmann syndrome Isolated growth hormone deficiency type IA Acute adrenal insufficiency Secondary hypoparathyroidism due to impaired parathormon secretion Pseudohypoparathyroidism Pituitary deficiency Autoimmune polyendocrinopathy type 4 Isolated growth hormone deficiency type IB Short stature due to growth hormone qualitative anomaly Non-acquired isolated growth hormone deficiency Autoimmune hypoparathyroidism Isolated growth hormone deficiency type II Waterhouse-Friderichsen syndrome Functioning pituitary adenoma Cushing disease Somatotropic adenoma Prolactinoma Functioning gonadotropic adenoma Hereditary central diabetes insipidus Isolated growth hormone deficiency type III TSH-secreting pituitary adenoma Pituitary deficiency due to Rathke cleft cysts Non-functioning pituitary adenoma Germinoma of the central nervous system Pituitary dermoid and epidermoid cysts Pituitary deficiency due to empty sella turcica syndrome Mixed functioning pituitary adenoma Isolated thyroid-stimulating hormone deficiency Sheehan syndrome Pituitary adenoma Nelson syndrome Sarcoidosis Tuberculosis Isolated congenital hypogonadotropic hypogonadism Isolated follicle stimulating hormone deficiency Somatomammotropinoma Rare disorder with multisystemic involvement and congenital hypogonadotropic hypogonadism Endocrinopathy with congenital hypogonadotropic hypogonadism as a major feature Familial isolated pituitary adenoma Non-acquired panhypopituitarism Null pituitary adenoma Silent pituitary adenoma

Provided care options 0

No available care options have been entered.
9.953800749.8007685Zentrum für seltene Hormonstörungen am Universitätsklinikum Würzburg
Last updated: 08.06.2021