Centre for Rare Lung Diseases at Heidelberg University Hospital
Description of facility
Director / Spokesperson
Professor Dr. med. Felix Herth, Dr. med. Markus PolkeInformation
Care facility for adultsDescription
As a partner in the German Centre for Lung Research (DZL), the Thorax Hospital is integrated into the inter-site collaboration in the field of basic sciences and clinical research. The Thorax Foundation Heidelberg, founded in 2015, specifically supports projects in science, research and patient care and prevention, especially in relation to diseases of the thoracic organs.
If you are a patient or relative interested in a diagnosis, therapy or second opinion at the clinic, please contact the outpatient clinic or ask your doctor.
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Consultation hours
nach Vereinbarung.
Care provisions
This facility offers the following
-
Participation in registries
- Genetic counselling
-
Clinical studies / research
The aim of patient-oriented research is to continuously improve the diagnosis and therapy of rare lung diseases. There is close cooperation with research groups within the university hospital as well as external institutions. The clinic conducts numerous scientific projects and clinical studies. Focal points are:
All forms of interstitial lung diseases, cystic fibrosis, pulmonary hypertension, complex endoscopic interventions in lung diseases, alpha-1 antitrypsin deficiency, obstructive airway diseases (especially severe asthma), smoking cessation. - Diagnostic
- Therapy
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Contact person for patients with an unclear diagnosis
Coordinator of the Centre, Dr. Okun (06221-564503, seltene.erkrankungen@med.uni-heidelberg.de); office hours by telephone: Mon - Fri 9:00 - 11:00, Tue and Thu 14:00 - 16:00. -
Contact with support groups
Lungenfibrose e.V. (http://www.lungenfibrose.de/), Pulmonale Hypertonie e.V. (https://www.phev.de/)
Contact
ILD-Nurse
06221 3968219
marianne.seiter@med.uni-heidelberg.de
Website
https://www.klinikum.uni-heidelberg.de/interdisziplinaere-zentren/zentrum-fuer-seltene-erkrankungen/fachzentren
Languages
Deutsch Englisch
European Reference Network 1
Preview of the assigned diseases 8
Provided care options 4
# | Contact person |
---|---|
1 |
Ambulanz für SarkoidoseDr. med. Markus Polke, Prof. Dr. med. Hanns-Martin Lorenz
06221 3968000
|
2 |
Ambulanz für Lungenhochdruck - Pulmonale HypertonieProf. Dr. med. Ekkehard Grünig
06221 3961288
|
3 |
Ambulanz für Interstitielle LungenerkrankungenSekretariat
06221 3968000
|
4 |
Ambulanz für Alpha-1-Antitrypsin-MangelPD Dr. med. Franziska Trudzinski
06221 3968000
|